My Guide now available in hard copy
This page is the home for the web version of the guide. A full colour hard copy binder is now available for $20 from the Alzheimer Society offices listed below or Valerie Powell at powellv@cgmh.on.ca 705-721-6754. Printing for "My Guide" was funded by the North Simcoe Muskoka Dementia Network and Casino Rama Community Wellness Fund.
A french translation without the graphics is available below the English version
Mon Guide en francais
La version francaise se trouve au bas de la page.
"They Say I have Dementia
.... and some days I believe it."
My Guide for Living with Dementia
Welcome to "My Guide for Living with Dementia".
If you would like to know about the development of "My Guide" go to the About the project page under Me & U-First! in the sidebar.
If you want to view or print the sections that make up "My Guide" you can do that here. Bookmark this site in your favourites file so that you can easily return to it.
If you have the Introductory Booklet you are already familiar with the content and you can scroll down to the sections you are interested in - or the full guide.
If you would like a hard copy of the "Introductory Booklet to My Guide for Living with Dementia." contact your local Alzheimer Society office:
The Alzheimer Society of Northeast Simcoe County, servicing Orillia and area. is located in Trillium Manor at 12 Grace Avenue, Orillia. Call (705) 329-0909.
The Alzheimer Society of Greater Simcoe County, servicing the rest of Simcoe County. Their office is in Barrie at 12 Fairview Road. Call them at (705) 722-1066 or 1-800-265-5391.
Overview of My Guide for Living with Dementia
"My Guide for Living with Dementia" is a communication, information and care planning tool about and for the Person with dementia and their Partners in Care. "My Guide" will:
Help with communication between you, your family, and others involved in supporting you.
Inform you about dementia and the many factors that can influence your dementia
Help you to record valuable information
Give you tips for planning for the future
The guide includes:
INTRODUCTORY BOOKLET: defines key terms & use of the guide,
introduces the P.I.E.C.E.S. model
"GETTING TO KNOW ME": place to fill in important information
P.I.E.C.E.S.: 6 subsections provide information, tips and opportunities to record important details about the Person with dementia within the P.I.E.C.E.S. framework
PARTNERS IN CARE: information to help Partners to support the Person with dementia.
RESOURCES: Handy Contact List
My Guide for Living with Dementia
Printing instructions for all or part of the Guide
You can download and print the entire "My Guide for Living with Dementia" or sections as you need them.
To print individual pages, when viewing the Guide on the screen make sure your cursor is on the page that you want to print. When you are in the printing dialogue box, select 'Current page'. If printing more than one page but not the whole document - select the page range.
The full Guide, including the introductory booklet, is 156 pages and is available in one large file below all the individual sections.
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Hard copies of this booklet are available free from the Alzheimer Society offices in Barrie and Orillia and the North Simcoe Muskoka CCAC. It is also included in the hard copy binder. You can download a copy here. It includes the introductory "Getting to Know Me" page.
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You have two choices here.
1) You can print only the Table of Contents which tells you where to find each Getting to Know me page found within each section of the Guide.
As you read through the guide, fill in the "Getting to Know Me" pages and move them into this "Getting to Know Me" section. Or, if you prefer to print new pages at a later date, you can return to this web site to print the "Getting to Know Me" pages that as you need them
2) You can print all the "Getting to Know Me" pages including the Table of Contents. For your convenience, all the "Getting to Know Me" pages found throughout the Guide are consolidated in this section. Print the whole section or individual pages as you need them.
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The individual P.I.E.C.E.S. sections of "Getting to Know Me" are available here.
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This is the first sub-section of P.I.E.C.E.S.
There is information on physical well-being and dementia and the Physical Getting to Know Me Pages. This section is 23 pages
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This section contains 20 pages on intellectual well-being and dementia and the Intellectual Getting to Know Me Pages.
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This section contains information on Emotional well-being and the Emotional Getting to Know Me Pages. It is 14 pages.
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This 22 page section is all about a Person's Capabilities or strengths. It includes the Getting to Know me Pages on Capabilites.
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Your immediate surroundings can significantly impact your well-being. You might notice that some environmental factors such as lighting, temperature, and noise can change the way you feel and function. Awareness of the environment and how it affects you will help you and your Partners in Care adapt. This section is 13 pages and includes the Getting to Know Me Pages on your Environment
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Your Social history will influence your experience with dementia. It is important for your Partners in Care to understand your life experiences. This could include your values, cultural background, significant life events, and important relationships. This section includes many Getting to Know Me pages to help you share this important information. Total of 20 pages.
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This part of "My Guide for Living with Dementia" is written for the Partners in Care. Partners in Care refers to the family member, the friend, the professional - who are involved in supporting the Person with dementia. Download this section if you are part of a caregiving team. It is 17 pages.
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This section is only four pages, and contains a blank form so that you can create a Handy Contact List. This is a place for you to keep important documents, such as notes from specialists, reports, information about services and tips from your Partners in Care.
This list can also be found in the Getting to Know Me section.
A list including suggested reading, useful web sites, and where to go for additional help or information is being prepared.
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Mon guide pour vivre avec une démence
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My Guide for Living with Dementia
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This file contains the entire Guide, including the Introductory booklet. You can view or print all pages. If you want to print individual sections, scroll down this page.
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